Extinction

Here’s my thought for the day. Being disabled, sick and vulnerable in Britain today is not just scary but petrifying. My disability and illness are by no way extreme when compared to those having to be lived with by many I know or know of. I still have some days, though quite rare, where I can almost live as I used to. Where I can get out, ride a bike, even very rarely camp. These days are few and far between and usually come with a physical, mental and yes an emotional cost but I would never give those opportunities up.
For many they do not even get the odd respite, and for some each day is an actual fight for life. Most of the time we exist rather than live. We draw breath, eat (some of us), sleep (some of us), lay in bed or on the sofa and depend upon the kindness and friendship of others to communicate and feel part of the outside world. That is existing. For some its far worse.
Now disability provision is signposted with a sign depiction a wheelchair. What I have learned the hard way is not all disabilities are that visible. I spoke to a man yesterday that seemed no different to anyone else, yet he is in the ongoing stages of a terminal cancer. You would not know that. I sadly have several friends with that form of illness. Some are survivors, some will survive and devastatingly some will not. All are fighters beyond anything those without that horror will ever imagine.
My illness’ restrict me and my decisions, they have stolen my career and my self respect. They have robbed me of my virility and self image. They have taken from me a lot of what I see as my essence of being not just a human but a man. I appear on here as opinionated, confident and I hope intelligent at times, however my memory is shot, I forget I am cooking or have taken my meds, I forget to fill in forms and although can speak up on others behalf cannot on my own. Today I cannot even lift a coffee cup without it shaking as if there is an earth quake. Today my pain levels are high which likely means hitting my strongest meds. Not an easy thing to choose to do.
I can never plan in advance which has cost me massively, from credibility to long term friendships. If I say I will do something, even a phone call I often don’t, not through choice but because I truly cannot either for physical, mental, exhaustion or because emotionally I cannot speak to anyone.
As I say my life is no where near as difficult and painful as those of others.
So anyway why this rant? Well each day we are informed of more cuts to services, to the NHS and to the (hate this term) ‘benefits’ that we need to survive upon. There is no ‘benefit’ to being ill. The money people claim is what we all deserve. I worked until three years ago, I paid into a system designed to be a safety net for those in need. I never imagined I would need to make a claim but paid National Insurance and tax every minute I worked. Lets just consider that term, National Insurance. It is an Insurance policy we all have to take out once we earn. A policy that always should pay out when its needed. You cannot run a policy then just change the rules once its required can you? Well Mrs May seems to think you can. She and her cabinet of fraudsters, corrupt politicians of the worst kind are waging a war, no that’s wrong, a genocide upon the weak, sick and disabled. She and her party are literally killing off thousands of our friends and family on a daily basis. People who deserve the support of the nation are being vilified and made out to be draining the public funds (those same funds I spent over thirty years paying into). The reality however is the only people stripping the UK of assets, commodities, that’s money and property, are the rich. This fake need for austerity was fabricated after we had to ‘bail out’ corrupt bankers, when their fraudulent dealings went awry. That was an opportunity for the rich to use that ‘bail out’ to create a fabrication and lie which they use now to steal what is the nations, ours, from us.
People as I said are dying daily. We know this but the majority choose to ignore it. It’s some perverse ‘I’m alright Jack’ attitude. Well think about it folks, when did this eradication of the weak lead last time? Germany 1936?
We are supposed to learn from history but clearly we do not.
So why are we the sick, the disabled, the vulnerable – and actually I used the term the ‘weak’ but the reality is that none of us are weak, each breath we draw proves that, so fearful? Because to many of you now we are valueless. We are a monetary statistic to be ignored and wiped from existence. You may keep a door open at the sight of a stick, crutches or wheelchair, you may think kindly of your ill cousin, maybe even occasionally take your poorly neighbour a bowl of soup, but you have allowed us to become the victims of the state. Disabled were always fighters not victims, but you all continue by inaction to ensure this government makes us so.
What next is your choice, you are the people, and even an individual voice or action may be the catalyst for something much bigger. Its up to you.
Jonesy.

Contempation

 

Lets look at the big picture right now. We in the UK have an unelected Prime Minister that has since before the referendum been intent upon ridding the UK of its human rights legislation (law).

America has a new President that has made moves to remove the USA from the United Nations, why? Because the UN has the Declaration of Human Rights. He also has already within his first days of office repealed rights of the US citizenship, he has begun to segregate swathes of the American people due to race, religion and even gender.

Our PM Teresa May was the first world leader to officially meet Donald Trump (or Daffy Fart to his friends), she was even photographed walking hand in hand with this self-confessed bigot.

 

So lets think why would both May and Trump wish to remove the rights of their citizens?

Well several reasons come to mind. One people with no rights can be made to work cheaper and longer. This makes more profit for the rich that like May’s husband and Donald own business’ including hedge funds (which means that like Mr May they can deny holding an interest in say G4 because it is actually their hedge fund that officially owns the stakes in G4 not Mr May directly, though he has a major stake in the hedge fund. Complicated hey? Not really but meant to seem so, in order to prevent you and me seeing the corruption).

The next reason is that without rights people can be held without charge or trial, they can be tortured and even killed by the state. Oh but surely that cannot happen in the UK? Well a senior Tory has stated he believes torture can work. Mr Trump has declared he believes not only can it work but should be used.

Scared? Oh no this cannot be real can it? Just Jonesy ranting again?

OK next, the Human right act here gives us all sorts of rights, and along with other laws means we cannot be discriminated through ability, race, gender, religion, culture, health or sexuality.

The issue is that we all of late have seen how the disabled, the ill, the unemployed, the Muslim’s, the homeless, the black, the Asian, and all vulnerable minorities have been vilified in the media, and worse by government departments, local authorities and the police.

Why?

Because this not only is absolutely distraction, taking your focus off the real reasons for things like austerity, for the corruptive dealings of the wealthy and the powerful (The Establishment) and those that govern us, by giving you a scapegoat, someone to blame that are not the true culprits, it divides the nation. It reduces opposition and negates the unity of the people, which you can believe is the one thing these people are truly afraid of. If we united against them, their corrupt dynasty would fall within days. Sadly whilst we blame the weak it will never happen.

Here in Britain we have more cctv than anywhere in the world. We are the only major country to have conviction without trial, (fixed penalty fines and even a police caution are viewed and recorded as convictions. These are often given at the whim of officers).

We also have a large state controlled media and Establishment owned press. They feed us ‘news’ which is mainly propaganda not truth. The main offenders are the BBC, The lovely Mr Murdoch and his Sky media empire which includes the Scum News Paper, The Main news outlets, which comes under the banner of MSM – Main Stream Media.

Even your soaps and tv programs are designed to perpetuate beliefs the Establishment want you to hold. Shows like twat Kyle, Benefits Britain, Benefits Street even Victoria Derbyshire are made solely to divert ire and loathing on to the most vulnerable.

The most worrying thing of all is that if we look back to 1933-1936 this is exactly (without the obvious advances in technology) how Hitler and Mussolini came to power. In the UK we see the weak and vulnerable as the cause of austerity, not the Bankers that gambled with your money and lost, not the MP’s that make fortunes from the arms industries and oil companies.

Am I being dramatic? Sadly not. What’s next? Well after May breaks up the NHS, privatizes the police, social care, child protection and then the military what else is there? Well all local government which will mean council tax will pay profits not just services, I imagine a three hundred percent rise in that, toll roads even on A and B routes, and stripping all the UK assets. The Country will in time become a business model not a country.

Sci-fi? Fantasy? Sadly I fear not.

You can argue all or even points of this, it is my personal vision of our future, sadly how I see the path the UK taking.

So feel free to criticize, but time will tell. If we do not act as a nation now kit will be too late.

Jonesy

‘2020’ hindsight, still a bit fuzzy?

Remember if we had locked down in February, if we had not had a corrupt government giving mates contracts and paying them our money to steal from us, if we had a prime minister and opposition with a backbone, if we had mandatory masks in February, closed schools, airports, ferries, stopped unnecessary travel even if it was to drive across the UK to test our eyes, if we had a primate minister who did not hide, a government that told the truth, that followed medical guidence, that put human life before their bank accounts and status amongst their friends, Royals that had the guts to shout ‘no’ rather than saying they want to be reincarnated as a killer virus, if we had a nation of people with common sense, prepared to social distance, wear masks rather than stand clapping the nurses, doctors, paramedics, keyworkers as those very live savers died on their feet, if we had a media that itself did not publish fake news and propaganda, if we had a government that had not run down all the health and social care services in the name of Austerity whilst paying for missiles we can never use, if we had focused upon our real enemies instead of a few refugees and migrants, not hating folk because of their gender, sexuality, race, culture, ability, if we had prioritised our families and not our possessions, then maybe, just maybe so many families would not be feeling the pain of loss, the fear of loss, the anxiety of even opening their doors. If we did not live in a country that treats its sick, elderly, disabled and vulnerable as scum, a drain, expendable maybe we would have seen the warning signs and acted upon them.
Yes hind sight is always ‘2020’ , (ironic hey) but looking back it’s easy to be made to believe the mistakes were accidental, not the fault of those in charge, unavoidable.
Just to be clear, the Conservative Government, the Prime Minister, the Leader of the Opposition, the press, and the businessmen asset stripping the UK made no ‘accidental mistakes’. Their behaviour was and is deliberate. They are culpable. They should be accountable, but unless we hold them to account now they will kill many many more.
Jonesy

COVID19 EXISTS! SO STOP BEING STUPID.

Daily we are hearing of friends neighbours and their families suffering or sadly losing the battle of Covid19. My heart goes out to those who are ill, dying or have died.
I know too well the pain of the families and loved ones who have died due to it, the worry and helplessness of the relatives of those who are suffering. I also know the fear of being a parent whose kids both tested positive and a son of parents who will be extremely vulnerable to the symptoms of this foul virus.
This morning I cried at seeing one of my friends on Facebook losing his wife yesterday to it.
I am heartened by so many humans who are doing all they can to protect and safeguard others, whether they are paramedics, nurses, doctors, porters, shop workers, caterers, those involved in keeping the infrastructure that protects us all, bus drivers, home carers, support workers, social workers, residential staff, teachers and school staff, taxi drivers, delivery drivers, and the amazing volunteers providing and delivering food, medicines and in the case of Volunteer Riders UK, the sewers manufacturers and others completely free PPE to all in need.

If you deny Covid19 exists, if you think its all a ploy then you need to open your eyes. If you try to discredit those who are putting their lives on the line, or belittle those lost to life then you really best keep away from me.

Covid19 is real, it is deadly, it is killing folk. Its that simple. If you put others at risk due to selfish behaviour then you may not call me friend.

Be sensible, be safe, protect yourselves and others. Do not take unnecessary risks, and please stay well.

Jonesy.

Non Europe?

Just to be clear, Britain has left the European Union not Europe. The UK is a small collection of islands that are part of the continent of Europe. I am as always British. I am as always European. No vote changes that. All that has really happened is we have given more control to the mafia that is the Tory Party, stepped back in time, regained a blue passport and lost rights such as free travel, fishing rights, economic rights, workers rights, human rights oh and are now paying more taxes for the money we still have pay to Europe, as well as the money we have to pay for increases in import and export duties, increase in prices, a devaluing of UK company stocks, increased transport costs to alternate trade partners and are now an isolationist country but unable to actually quarantine the nation against Covid19 because the establishment still want to profiteer and asset strip us all.
So hope all of you that believed the leave campaign lies have come to terms with it.

The pain of losing a loved one means no death is ‘acceptable’

Let’s just be clear Covid19 kills in a horrid way. It’s not an easy death for many, but at times just as bad is the real, very real pain it leaves in its wake. If you have not lost someone close let me tell you about grief.
When I lost my brother it was in the hospital that I was told. I was sat in a little room with my father. A nurse came in and told us both. I had never seen my father break down until then. We both cried but in the back of our minds there was still a small belief they had made a mistake.
They then asked us if we wanted to see him. We were led into the resus room. There behind a curtain was Robert, my 35yr old kid brother. He was 18 years younger than me so not only a brother but like a son to, as well as at times my best friend. He looked asleep other that the sweat and grey tinge to his skin. I leant down and cuddled him. He was still warm but so still. I broke down again, now it was real.
If you asked me to describe the room I maybe couldn’t, but I can the colours and smells. I remember blurs who may have been members of staff.
Neither me or dad wanted to leave.
Then we had to walk to the car, holding my dad’s hand for the first time since I was 6, then putting my arm around him so to steady us both. We were silent. We realised we had yet to tell my mum. That had to be in person not over the phone.
Already my body was screaming in pain but my mind was overwhelmed, almost for a fabulous but brief time emotionless. Only fabulous because what was to happen next destroyed my soul all over again.
We walked into the house and my mum was sat in the back room, she looked up and guessed straight away, yet I still told her. I have never in my life heard such a cry of pain emitted from another human. She fell to her knees and sobbed.
I cannot remember the rest of the night nor getting home.
Thankfully the next day the doctor prescribed me diazepam which to a degree helped a little. The next few days were busy arranging things, with so many emotional breakdowns in between. We had to clear his house, sort out the paperwork, deal with his fuel bills, all sorts of practical stuff that with hindsight in an odd way gave enough distraction that we could at least breath, without the support of each other and my closest friends we would have not got through it.
I couldn’t however go to my toilet without triggering and being dragged back to resus to see and feel him for the last time. My bathroom was the same colour I remember resus as being. I was diagnosed with PTSD. Constantly going back to the night, to resus, to his house.
I couldn’t and still can’t sleep without going back to having the police break into his house, to see his weakened body being carried out on a stretcher or being told he had died.
I was initially so angry, to the point I told the patients waiting to see his GP just how the GP’S incompetence led to my brothers death. And even a year on I am not just convinced of that but can now evidence it.
Not a single day even now passes without me becoming tearful, me regretting not saving him, not telling him I love him enough. Most days I still cry my eyes out. I miss him more now than any teenage angst at losing your first true love.
It effects my health conditions both physical and more so mental now.
The pain hurts as if I have been punched and punched over and over. It’s like fight or flight, without an opponent or path of escape.
I never realised how much losing someone could hurt. Every day I wish not to be here, to go join him, but I know if I did I would be condemning my folks to even more pain that they would not survive, and putting my kids through the same experience as me. I cannot do that to them no matter how much I hurt.
Every morning after him visiting me in my dreams I wake to the reality he has gone.
Neither my mum nor dad will ever recover from this.
They ache to see his son but sadly my brothers ex makes that difficult to impossible more and more, despite playing the grieving widow at his wake, and telling all and sundry that she would ensure his son would carry on seeing his fathers family. All I can say is that was a cruel lie.

This is my personal ongoing journey and experience of loss. My only other real losses prior to this was my ex wife and I losing two babies at full term. Anne and Leo. They were and are loved by both of us, that loss was beyond painful, and with losing them we lost dreams and maybe our future as a couple, but we only knew them for who we expected them to be, whereas with Rob he was a pain, a git, but also amazing, loving, a proud dad and sadly a very ill young man who was continually misdiagnosed by those who should have known.
I have written this as an abridged insight into losing someone you love, for any reason. It’s why I started Volunteer Riders UK, a bikers group that has so far delivered over 6,000,000 items of completely free PPE without any cost, to the NHS, the military, to carers, nurses, community teams, front line workers, shop workers, bus drivers, school and college students, the vulnerable, the sick and the disabled, we still do this daily despite the Government making claims everyone has PPE.
So when you tell me there have only been 60,000 deaths over the yearly average so far despite Covid19, please remember that’s potentially 60,000 families, multiplied by however many family members all going through the same pain I have described.
In what dimension is that acceptable?
It is not.
I hold that if the UK had gone into full lockdown and quarantine in March 2020 the vast majority of these deaths (to date at time of writing 71,567 on 30th December 2020) could and would have been avoided. Almost all of those families would not have experienced loss.
1 death too many is inexcusable, but this is beyong criminal.
So forget tiers, put the entire country into full lockdown now, not a week Wednesday, quarantine the UK. No flights, no ships and close the tunnel.
Definitely no schools, colleges or universitis should be open.
Where people have profiteered, been criminally negligent or deliberately broke the rules prosecute them. That means business, individuals and the bloody leaders of our government.
This pandemic is real. People are dying. Families are suffering. No more lies, no more conspiracy theories, no more selfishness. No more greed and corruption.
Please feel free to share.
Keep my name upon it for its my experience.
Jonesy Jones

Customer Care? HOTPOINT NO!

https://youtu.be/MR7smay4mY4

Just watch this taken from hotpoint Facebook, almost 5 minutes of complaints, I could have recorded 5hrs https://youtu.be/MR7smay4mY4
I bought hotpoint washer dryer a week ago. Same day it was delivered the door leaked. A week on despite emails from appliance direct and calls from me I have not got through to them or had contact. Are they going into liquidation? Once a reliable company now sunk to this. I am disabled and need to wash daily. Not acceptable. Will be advising on all forums not to buy hotpoint. Shoddy quality shoddy customer service.
If they are not going under trading standards should close them down.
Minevwas a leaking door, others have had doors fall off, even it seems appliances exploding and catching fire.
Seriously DO NOT BUY HOTPOINT OR ANY OF THEIR BRANDS!

Volunteer Riders UK free PPE distribution – ongoing

VOLUNTEER RIDERS UK, protecting people, communities, families and you from Covid-19.
https://www.facebook.com/groups/229513121739915/?ref=share
I set Volunteer Riders UK up in March 2020. It was an idea I had to distribute completely free PPE across the UK using motorcycles.
I began the project as a memorial to my brother Rob ‘Jonesy’ Jones who died in December 2019, due to a long and undiagnosed nor treated illness aged 35, I wanted to ensure as many families as possible never have to unnecessarily experience the very real and agonising pain of losing someone they love. .
Since then we have as bikers took PPE from Devon to Scotland, from Gt Yarmouth to Wales.
We have provided transport for manufacturers and sewing groups all over, even utilising a plane to deliver to an African country. Every piece we carry is completely free to the end user. We do no fundraising nor do we have sponsorship, we are running completely on the good will, time, transport and fuel of our riders, coordinators and drivers. The people making the PPE do so again free of charge to the end users, though they may get funding from other sources.
We are a completely cashless group.
We have been responsible for transporting most of the PPE from amazing groups such as NHS Heroes, For the love of scrubs (FTLOS) and locally to me Sheilagh’s Sewing Circle in Dronfield.
We work with manufacturers, sewers and have our riders all over mainland UK and occasionally have liaised with groups in Ireland.
The group has currently around 3,800 members, is non-political in any way, and is a credit to every member who by being a part of it has made this immense project so successful.
We believe currently we have delivered massively in excess of 6,000,000 pieces of free PPE from masks to complete scrub sets.
We have not as yet even begun to calculate the miles ridden.
We provide to front line professionals both in and out of the NHS, hospitals, care homes, GP surgeries, schools, colleges, ambulance teams, community midwives, Covid recovery wards, Gt Ormand Street, along with giving them to vulnerable children, families and individuals.
Throughout the period we have been running it has been a huge learning curve and has displayed the best humanity has to offer.
So remember when you see that  biker whether bearded, dripping in leather, covered in patches (like me) or wearing hi-viz like so many others, remember not only are they fathers, mothers, sisters, brothers, grandparents or friends, but also likely are putting their all into keeping our families, friends, communities and country safe.
So when you want to clap a true hero just remember that hero may be closer than you think.
I am proud of each one of those trying to keep us all safe and call every member of VRUK brother, sister and forever my friends.

Jonesy VRUK founder.

Future of Labour

So St Sir Kier of Starm (I was going to call him Sturm but then found that Sturm means noun. : a late 18th century German literary movement characterized by works containing rousing action and high emotionalism that often deal with the individual’s revolt against society. So in contrast to Starm which means puppet of the establishment and unofficial agent of Mossad), is it seems about to face a revolt after his vile behaviour towards Jeremy Corbyn.
Someone on a post earlier in a socialist group asked what the left in Labour are going to do, the thing is Labour is supposed to be bloody ‘left’, it is supposed to be in opposition to the Conservatives – the ‘right’ (as in direction not morality).
Starmer is not a left wing politician, he and his ilk are careerist right wing (center right at best) representatives of those who wish the status quo of the poor remaining poor and the rich getting richer.
If there is no one in the gutter how can they judge how high their platforms are?
Prince Phillip let it slip a couple of years ago when he stated that he wished a virus would wipe out half the world (not a direct quote but near enough). The rich, wealthy and super rich do not value our lives. They do not respect our rights, just because they smile when stabbing you does not make their tyranny any less.
It’s easy to lie, to use fake news, propaganda, and cover your own corruption, deviance and atrocities when you own the press and media. It’s easy to convince the masses that you are on their side it seems by saying you like their music, support their football club, drive a car they love or ride a pushbike.
Politics truly now is smoke and mirrors, a deception that makes the majority believe we live in a democracy. Sadly we do not.
There will never be a time that we are permitted or allowed to have a free honest vote on anyone who is not owned by those in charge.
Starmer, Rayner, Mann, Watson, Hodge, Brown or any of the long line of sabateurs have I believe been bribed, cohersed, romanced not just by our establishment but by foreign governments and powers. They do not in any way represent the membership, the National Exec, the Party or the people.
I cannot see any simple way out of this disgusting reality that doesn’t involve us being suppressed by force or living under their rules of compliance.
It really to me is that simple.
So yes it would be good if Starmer was sacked, challenged and replaced, but we need to Learn our lesson, the powers in control will never allow an honest moral leader and cabinet run the UK.
Fractionalised parties will never gain power. The only chance of change is a ‘Labour Movement’ that sheds blood sweat and tears as our forebears did with the start of the unions and civil rights.
If you want a fair, non discriminatory and caring future of hope for our children, we are going to have to stand up and fight.
Jonesy

Disabled scrounging scum?

Let’s be fucking clear, no one would fake chronic illness or disability to live on benefits and be VILLIFIED by society. Get a fucking grip with your pathetic ‘scroungers’ rhetoric. I would hapilly swap my pain with any knob head if it meant regaining my self worth, self respect, health, career and be able to walk in the countryside, climb the mountains, hike the peaks, swim, camp, canoe and dream.
I will give you my illnesses if it means I can regain hope.
So wake the fuck up. People living on benefits are not scroungers, they are not putting it on, they are not faking it. And before you say…. But I know….. Ask yourself are you their fucking doctor, their consultant, their specialist. Do you clean up their faeces, their vomit, help them dress, keep them from taking their lives due to despair?
Do you see them on the bad days, know the pain they fight through to appear ‘normal’?
Have you understanding of fear of being judged, watched, called, criminalised for daring to have odd days you cope with your constant pain?
Do you realise that illness and disability mean you can’t plan even today, nevermind tomorrow or next week. You lose friends due to being unreliable. You lose relationships if you dare to show your weakness.
Do you have a clue the damage the meds that keep you alive do to your body, loss of teeth, hair, libido, sensation, motivation or joy.
Do you even now with lockdown truly get what isolation really means, what social anxiety it, how brain fog confuses, disempowers and makes you feel like you dare not speak?
How being unable to do the most basic excersise and the drugs you take pile weight on so you live in a constant catch 22 life.
How every day you are at risk of taking too many or too less meds, where you fight each minute not to kill yourself, despite having planned and readied the tools needed to take your life?
Do you understand how a simple thing, a look, a word, a smell, a place, a Xmas decoration can trigger, causing panic or despair?
Sadly unless you live it, experience it you will never understand it. Why sadly? Because without understanding it or having empathy towatds those living it you will no doubt continue to judge us, to attack us, to reduce us to in your mind sub human scum.
Well we ain’t, we are as entitled to respect as you, we are as valuable to this world, this society, our communities and families as you.
Our lives matter as much as yours, just sadly so many of you fail to see that.
So before you do judge us take a moment and realise it’s you that is the arsehole not the person you seek to bully and put down.
We don’t ask for pity just the respect we all as humans deserve.
The chronically ill and disabled are true warriors and each day may be our final battle.
Jonesy Jones