Fibromyalgia the path.

I have been diagnosed around 8yrs. In that time I have discovered every person’s path is different, but with all too many common features. The Internet is full of so called cures and treatments, all with their own guarantees.
I have tried a few, from creams to spices, honey and sprays, liquids to tablets. To be honest for me none have worked. But that’s only my experience.
Fibromyalgia is like it is with so many others, only one of my health issues, physical and sadly developing into mental health and effecting my emotional wellbeing. 
Years of pain clinic resulted in my being discharged due to no further options left for non terminal patients.
So now it’s a lonely battle.
Diet may help some but my other illnesses make that complicated.
People scream exercise, but when extreme exhaustion sets in, exercise is the last thing on my mind, reaching for my underwear in the morning is a battle enough.
When I was diagnosed, a woman running the local support group told me not to worry, after 2yrs I would manage the fibro and be back at work. Like I said, that was 8yrs ago, and I truly am not in the position she forecast.
Fibromyalgia has reduced my social circle, stripped my confidence, stolen my options in life. My family do not believe in it, my kids, now adults share their mother’s view that I am a useless disabled lazy @*#%. They have no contact with me.
Reading this you may think you journey is hopeless, but it’s not, every single one is different as I said.
I personally may have quite a few days I can manages, where I can hide my pain, pretend I am not vulnerable, even do some things I did before illness hit. Other days though, no one sees me,I become a hermit, struggling to get up in the morning pr get back into bed.
Other folk cope better, or sadly for a few, worse.
The more manageable days are the only reason I continue. For others they may adapt, they may find a relief I have not.
So do not give up hope, but if you walk (shuffle in agony) a similar path to me, you are not alone.
And never despite all the pressure from the press, the dwp and others feel any guilt for actually living, on the few days you can.

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Jonesy, just a human.

It's 5yrs since I started this blog. now in 2023 I am 56, and already medically retired due to chronic ill health. This site airs my frustrations of how I see our country and world, and how I truly believe it needs to change.

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